Advocate Shares Experience Raising Awareness and Advancing Research for Congenital Lyme Disease

Bruce Fries of the Patient Centered Care Advocacy Group has actually been promoting for clients with Lyme illness considering that 2014.

In the post, Raising Awareness and Advancing Research for Congenital Lyme Disease he shares the story of how he arranged an advertisement hoc group that ended up being referred to as Mothers Against Lyme and dealt with NIH to advance research study on hereditary Lyme illness.

The short article supplies a behind the scenes see into in arranging a webinar with NIH to promote chances for financing and assistance for research study on hereditary Lyme illness. It likewise consists of information on an ask for retraction of incorrect info on genetic Lyme in the IDSA/AAN/ACR 2020 standards for Lyme illness.

Following the deal with NIH and the retraction demand, Mothers Against Lyme transitioned to a meetup group sponsored by Project Lyme and led by co-chairs Jane Marke and Isabel Rose.

French fries was pleased to see Mothers Against Lyme come cycle and survive on as an effort of Project Lyme, which supplied the trigger that got it going.

He continues his work, raising awareness and advancing research study for genetic and pediatric Lyme illness, through the Patient Centered Care Advocacy Group.

About the Patient Centered Care Advocacy Group

The Patient Centered Care Advocacy Group is a 501(c)3 not-for-profit company that promotes for enhanced care and access to take care of chronically ill clients who are underserved, marginalized and victimized by the medical facility. Its existing focus is raising awareness about the threat and effect of genetic Lyme illness and teaming up with other nonprofits and federal firms to advance research study.